* Everything was going well until Martha was just 4 weeks old (February 14th 2012) somehow she caught a virus and ended up in Hull Royal Infirmary on oxygen in a head box. After 2 1/2 weeks, and with no real change in Martha's condition, we all started to ask whether there was something else wrong. Following another chest xray, (which showed an anomaly) Martha was diagnosed with a Congenital Heart Defect (CHD), she was just 7 weeks old. Martha's condition is called AVSD which basically means there was a big hole in her tiny little heart that was letting oxygenated and non-oxygenated blood mix. The cardiologist explained she would need an operation when she was a little stronger, usually 4 months old,to correct the condition. We were all obviously so upset to hear that our little girl was so poorly, but this condition was treatable so we all focused on helping Martha become strong enough to cope with the operation. It never crossed anybodies mind that anything could go wrong because it was treatable therefore there was no question Martha would be well soon. She was eventually discharged home.
Martha ended up in hospital again for 2 weeks as she began to struggle feeding and became breathless, but with new medication she was allowed home again.
On Monday (23rd April 2012) before her pre op date (which was on the wednesday) she developed another virus which quickly took hold of her tired little body and, even though many doctors and nurses tried so hard to save her, Martha's heart could take no more and she passed away on April 24th 2012 in Hull Royal Hospital surrounded by her very loving family and friends.
There are no words to describe how we feel - We have lost our very precious and beautiful baby girl and she is missed so very much each day. Many tears fall and will fall forever. My little ballerina is an angel in heaven now and Life will never be the same again.
Martha you touched so many lives even though you were only on this earth for 14 wonderful weeks - such a special little girl that no one will ever forget
Love you always and miss forever
Mummy Daddy and Florence
xxxxxxx *